I’ve been patient partnering since discovering I didn’t understand the jargon in a pre-natal class. That motivated creating videos for expectant parents that became one of two television networks broadcasting in top teaching hospitals across North America. Over the years, I’ve contributed to numerous projects, initiatives, strategy sessions to bring my patient’s perspective to a sea of health care professionals of all specialties. Here are a few of my proud moments.
The first website on dying and death, from the patient's point of view
BestEndings.com is my repository of extreme learning about the decisions, options, realities, along the way to The End, along with a Planning Tool to help you make your way through your own thoughts, worries and questions.
North America-Wide Study on Advance Care Planning
It was through twitter that I met Dr France Légaré, Research Chair, Shared Decision Making, who involved me in a study funded by the Patient Centered Outcomes Research Institute (PCORI), involving 7 Practice Based Research Networks in Canada and the U.S. It was a fabulous effort of coordination and collaboration. Read all about it.
Patient's (that'd be me) perspective on an educational poster
Dr Sharon Straus is rhw Tier 1 Canada Research Chair in Knowledge Translation and Quality of Care so when asked me to comment on this draft poster for a new Shingles vaccine, I was honoured. Here’s the draft
Patient's small but meaningful changes
Small but meaningful changes: spelling mistake in the headline, images that don’t tell the right story and consistency of terminology
